The Local Giants

Jeremiah 17:7-8 “Blessed is the man who trusts in the Lord, and whose hope is in the Lord…(my paraphrase) He shall be like a giant tree whose roots run deep to never lack water, and who is never anxious about weather and always produces good fruit.”

The two oldest trees on the acreage have been much of my visual focus this winter. The brown barren landscape and the many wind and fire watch weather warnings, makes me wonder how many branches are even left. The oldest tree at over 160 years (planted 1860’s) has such a gnarly look that the squirrels don’t even use it anymore. The second oldest planted approximately 1880’s has a few smaller branches yet and does look to have more recent growth. The most difficult issue with tree second, is that the roots have set out above surface and are in desperate need of topsoil to keep from nicking the mower blades. That’s a definite plan for the lawn care list. These local giants are not ginormous Ents, but they sure are a testament to time and remind me of God’s provision for those who trust in the Lord.

March arrived with some more pendulum temperature swings. One day it’s nearly nice enough to wear only a sweatshirt. The next day we are bundling up in all the winter gear and wearing a scarf to keep the cold from snatching the breath out of our nostrils! So I decided that crochet challenges were again in the works. Marching across the yarn miles with my crochet hook always helps me face the cold days better.

Crochet borders is my current indoor past time. I finished one border on the daybed blanket. And then decided to finish out the “year” memorial with a border that matched some of the flower pattern. Of course after i was done then I thought of another idea for graduating more color use. Oh, well.

Puppy tales untold, Kona’s journal has not had an update for a while. Here’s what he does. I have trained him to find any item that hits the floor. This is important for me as often things roll away from my peripheral and he does a great job. Of course we won’t mention all of the facial tissues he constantly has to give up for finding when I’d prefer he left them alone. Kona also is my alert eyes, when we go places he will point out new entrances into my space and help me know someone os near. Kona also does a pretty good job with occasional guide at stairs and curbs. He has been trained to pause before any change in terrain. If only I would “listen” to the leash changes better. One time he told me there was a parking cement curb, but I missed it. I did not fall just stumble hop. On the way back the exaggerated jump over the cub and his looking back at me said, “watch the curb- you dummy!” I find humor in some of his tell tale ways of “showing” me what is going on. We recently had to take him to church a few times, due to the grandkid mess of items on the floor (quick retrieval for an overnight stay) that did not give us enough time to “puppy proof” the house for him to stay alone. He has done great any time he goes into a social setting. He is so quiet and does his under chair hide that most people don’t even know my alert dog is with me.

The most hilarious happenings are how the grandkids all and have a face-time call he would always begin with “see Cocoa?” Too which I either walked out to see the horse, or had to answer, “Oma is in the house, and Cocoa does not live in the house.” Isaac would repeat “See Cocoa?” Now baby Joseph is about six months old, and already hollers at me with a face-time voice if I am talking to another. Then as soon as he sees me he begins puppy panting so that he can “see Kona.” My little niece Marigold does the same thing. They are concerned for my puppy more than me. Haha.

What do the local Ents have to do with any of this? Except for Charlie barking non-stop up the tree this morning, we don’t think of the two old branch managers often. I mean really, they just stand there looking quite stark naked in their winter chill. Yet, I wonder at all the things that have happened here for the last 150 years. Those old trees have witnessed so much. If only they could talk. What stories would they tell? My dog can’t talk yet he does try to tell me some things, like the lid that fell is still up on the counter somewhere. And little ones that don’t talk yet do try to tell us what they want or need by their cries and or by their giggles. Their are witnesses and evidences of so much if only we have eyes to see or ears to listen.

My new book is the Molly Burke memoir “Unseen.” Now sure I really want to read something that is so close to home. I also have RP and have been legally blind for a number of years. I am glad for tools that help visually impaired persons. Everyone has to have their own “helps.” For some it’s glasses. For some it’s white cane and a dog. For some of us it’s an alert puppy and the ability to Zoom every text out there. For others its people and the most accurate APP available. Don’t get me started on apps and updates!

The Local Ents aren’t telling me any stories yet. I’ll let you know if the trees begin talking. For now they remain silent witness to any changes or weather or happenings here on the homestead.

Momentary Afflictions

2 Corinthians 4:16-18 “Therefore we do not loose heart. Even though our outward man is perishing, yet the inward man is being renewed day by day. For our light and momentary affliction is working for us a far more exceeding and eternal weight of glory, while we do not look at the things which are seen, but at the things which are not seen. For the things which are seen are temporary, but the things which are not seen are eternal.”

Thirty five years ago I woke up from anesthesia following an appendectomy and hear this little song in my mind as my conscienceless returned to me: “The birds upon the tree tops sing their songs, they lift their little voices all life long, so why can’t I? Why can’t you, Praise Him Too!” It has taken me nearly that long to understand that purpose statement in my life.

When my ears are nearly blowing up from the sinus pressure of a very long allergy season, how do I find my voice to Praise God? When the wind is blowing and the low whine is driving me insane just as the wind nearly did some thirty years earlier during a blizzard, how do I Praise God now? How can I praise God when I am having a bad day physically, because my eyes don’t tell me where I am anymore? There are days I find it hard to find a song of praise.

These present afflictions can go on and on some days zapping our energy, our hope, our focus, our love, our kindness and even our faith. We live in a world of full of erosion and destruction. Every day becomes a battle to grow an inner belief that does not fade.

So taking a look at the moments in my life today. What is true? My first focus of any day is what is the weather. I want to know how to dress. I am so glad that I have a home that keeps me out of the elements all night long and that I have a device to tell me how the weather is for the day. The truth is the air surrounding me is more my focus than the One who gives me the ability to breath that air. Lord, thank You for giving me so much!

What is noble? Looking for the grandeur amongst the clay pots of life is more to be commended that studying the dirt that fills the pot. For me it’s all about the beauty of the plant in the pot. Today, the holiday cactus put a new blooms on. Last year I have five months of continuous blooms on the plant. It amazes me to see the beauty of the trumpeting bloom declaring God’s infinite imagination!

What is just? While many of us wish life could always be fair, much of the time it simply is not. Like what justice is there in my husband’s having a muscular dystrophy that is so obscure and debilitating? What justice is there in giving me a body that could walk miles but lungs that won’t allow it? Physcially speaking living in a fallen world means justice is not to had within our life here. God’s justice is not often known here on earth. It’s eternal justice that we seek, and even that is only done by the everlasting kindness of a merciful God through Jesus.

What is pure? There are days, I am reminded that little Kona has a little white spot on his chest. I think of that spot as his purity mark. Dog’s love with pure abandon. They have no preconceived plans for the day. They have no concept of anything other than what we offer them. God put His mark of love in Kona’s little heart and it shines right through to make a spot on his chest reminding me that God loves us with pure abandon also. Jesus left his home in heaven and came to show us what pure love looks like. It is so bright it sends all the darkness away!

What things are lovely? Praise God for so many lovely thoughts to turn me our of my troubling mindset. The wind can really do a number on me mentally. But only God can take this momentary affliction and help me find things to Praise Him about. It is lovely to have a classic radio station to drown out the wind. It is lovely to have husband that loves me enough to call and see how I’m handling the day. It is lovely to have a puppy lean on my legs and tell me I am not alone.

What good report have I to share with you? I finished the pink / gray scarf with the nordic Freyja heart pattern. I did it thinking about breast cancer awareness. I have two aunts and now a cousin who has survived the dreaded cancer. That is a good report!

What virtuous and praise worthy thing can I meditate on today? So thankful for my daughter’s and the virtues that God has instilled in them. From one being a mother that constantly plants good seeds into her children, to the other being a boss that lifts up her employees to do their best, God has granted me two beautiful women to watch on a daily basis be praiseworthy and virtuous .

Phillipians 4 verse eight says, “Finally, brethren, whatever things are true, whatever things are noble, whatever things are just, whatever things are pure, whatever things are lovely, whatever things are of a good report if there be any virtue or if there be anything praise worthy, think (meditate) on these things.” (ESV). I use to get stuck on the whatever attitude that people had for a time, something like the overuse of the word “like.” Thinking on the good report rather than all the negative bad news in the world is a focus challenge. While my ears feel like they are about to blow up and I am deciding on whether I need more medicine or the doctor, I must decide to think upon the good report. For example, today the tub of onions that I received from my dad’s onion patch got tipped over at some point last spring. We just left it that way, and sure enough the onions prefer growing on the ground than in the tub. I was able to harvest a few for my chicken noodle soup today.

Greenhouse update or good report: The aloe vera plant went crazy this past year loving the atmosphere in the dome. I now have seven plants to give away where there was just two before. I’ll keep two and get rid of the extra.

My crochet story good report: I finished the pink scarf and started another. Even though I lost a whole bag of yarn this last few months. I misplaced while preparing for the grandkids overnight stay when little newborn brother came along. I still have not found the lost bag of yarn. My husband was nice and let me buy more!

Flat On My Face

Flat on my face is how I feel most days. The goals I set for myself rarely get accomplished. This week, I really wanted to get the plants that I picked up last Friday into new homes. That’s all. There were about 2 dozen that needed to be planted.

So on Monday I got right to my chores. I watered the existing plants places, found new homes for about nine or so and tried so hard to get after some weeds while I was at it. By four pm the bugs had won. The gnats, mosquitoes, flies and beetles were so bad that I was in an epsom salt and baking soda bath trying to recover. By midnight, I knew I was sick. The antihistamine overload gave me a regular stomach ache and I felt like I had the flu. West Nile? No, but I had to stay home from visiting the little people. I slept until nearly noon.

That evening after numerous attempts to do anything, I looked in the mirror and said, “wow-you look sunburned!” Nope, just totally ate up by bugs. The hives were up and down both arms, across my shoulders, and all over my neck. I was surviving on Benadryl once again. Something had to be done about the bugs.

So my wonderful hubby got after them. Two evenings of tanks full of garlic oil and bug-be-gone later, we can now be outside for more than fifteen minutes without getting carried away to the next township. We also put out a few fly traps. And ordered one of those bug zapper machines. Being sick was not much fun. Even two days later, I would work for fifteen minutes and pour sweat out of every gland. Then have to go lay down for an hour.

Falling from grace as a gardener means that I can’t handle the bugs or the weeds. How is one to even keep the garden looking good? By Thursday though the bugs had taken quite a dive in population. So I spend the day planting and weeding the hydrant flower garden. The Hydrant Bed had not been touched in over a month.

Little by little I began designing the “Be Glad” garden that will surround our new little statue that we named PollyAnna. That is still my most favorite of all childhood books. So it seemed most appropriate to name her that. Of course, she needs a little clean up after falling on her face.

My hubby decided to put out a sprinkler to keep the cat out of the area. And sure enough the top heavy stature fell over. I have some work to do next week to paint and seal her before she sits out in the weather for the next few years. So I am watching a lot of youtube videos again on statue care.

The other set of plants that will mirror this garden will be planted behind the bridge. I hope to get them placed today. And I did! Still have to move some of the lilies from the vegetable garden.. The whole vegetable garden will get an update this fall also. A couple more boxes to grow veggies and more rock and edging to finish it and make it less weed prone.

So my daughter tells me that my little grand daughter had quite the spill the other evening. While sitting in the potty before bed time child number three fell flat in her face on the floor. Mama was in the room and did not catch her. But mother giggles are some times hard to hold back. . Because mommy thought it was funny the little girl did not cry. She is just such a little clumsy but oh so curious and courageous. We all love her sweet nature and love of all things little like animals and such. One day she was pretending that her little hands were holding a baby hedgehog at the noon meal. It was a grape. “Sheh, “ she said, “You’re scaring my hedgehog!”

I hope that’s the end of the “face plants” for the week. I really don’t want to experience it myself. So I am glad to have the black line painted on my steps edges to define them better. My sister was the first to put blackened edges on the top and bottom step. Of course it does not help at night, but during the bright daytime house it is amazingly helpful.

The best Bible story I can think of is when the Philistines took the Ark of the Covenant and placed it in the temple of thegod Dagon. The man made idol fell on it’s face day after day until the head actually fell off. I Samuel chapter five tells the story if you’d like to read it. The point of the whole story is that God is real and man’s imagination is God given and no image can bear the presence of the awesome Creator of the world. I thank God that my little PollyAnna is just a cement replica and only a type of an Ebenezer stone to remind me of the “Be Glad” game. Being Glad that God has given us so many things to remind us of the One who is the Beginning and The End. Alpha and Omega.

Shadows Dispel

“…shadows dispeling with joy I am telling, He made all the darkness depart…Heaven Came Down and Glory Filled My Soul!”

Darkness Closes In-and I wonder just how much longer. How long, O Lord? I miss so many cute little things that the kids do. Unless I sit still and literally stare at them, I don’t see there little faces that they make. I wonder so and struggle to recognize faces because I see the backs of their little heads and miss all of their other happenings.

I even miss looking at my husband’s face. I’m about to set up the table so that we have to face each other.

Becoming…. This word keeps echoing in my head and heart. As human beings we spend so much of our time “doing.” Just being is left totally he end of our days. We rarely think of what we are becoming. The other thought I have is how “becoming” was a word once used to express the beauty of the Lord’s touch upon a person. Some people are so enamored with “handsome” features that they will not look upon a lowly person or one of less stature in the becoming realm.

Once upon a time I met someone whome others thought of as less becoming than others. I remember getting to know this person and thinking how much she displayed the “character of Christ” in her life. She seemed to me the most beautiful soul that ever I had met. Yet many people would not even visit with her for her looks were not pleasant. One time I read a writer use the words “ the smile of the homely can radiate the Lord’s beauty more than the most handsome in their sour disposition.” Indeed.

Real and Truly Me… When do I feel the most authentic me that God has made me to be. Three examples are all that I have to share.

The first is when I am playing piano and it truly becomes “play.” Like when my sister tried to play some song that she worked much of her high school piano lessons to learn. Then I sat down and began playing it in it’s entirety. For the life of me I can’t recall the huymn at this moment. But the sense of who I am and who God is making me to be while I played that song completely out of no memory work or previous practice. That was ME. (I never meant it to be boastful by any means… just the nature of God enabling me to play piano.) Some will say I am gifted. Maybe.

The second example I can give is when my grand kids are searching for a moment of entertainment and I get to impart “Imagination” to them. Like the day my oldest grand daughter was so hungry she began whining for snack nearly a half hour before her mommy was ready to find one. So

Who I am… when it’s dark and I’m struggling to find the children in the room and Yolanda’s house. The sense of fear that crouches nearby to disuade me from enjoying what I hear while I struggle to see the silouette fo some child.I began imagining with her. I am so so hungry that “I am an Eagle flying over a river with no fish.” I am so hungry I am a bear with no berries on the bushes. I am so hungry I am mouse in the cupboard with no crumbs. Finally she said “I am so hungry I am a cheetah with no chips to eat.” I clapped for her. Good job! That’s much better than whining for fifteen minutes. And now mommy is ready

The third example I can give is when I am in the greenhouse planting up plants. The enjoyment that I experience is never ending. And I forget about time and all else. I could stay in the greenhouse for hours. When I don’t get my “time” in there, I soon get cranky and wonder what I am experiencing. So It’s time to get back to the escape room. Taking the dog is not an escape. I wish he would just lay down and behave himself instead of trying to get my attention by being naughty. There are days I want to just go there and forget the rest of the world even is happening.

The disgust at myself when I see one more container in the flower bed that needs to be picked up and returned to the greenhouse. Full irritation when I hit my ring finger and break a blood vessel right in the joint. Ouch. And the fear I have when I begin walking while on the phone… should I even be moving right now! And there are times when I have crashed over something while on the phone. Concentration is what it takes to move anywhere. Is this still real and truly me when I am in my full struggle mode?

When are you most your self? It might feel really hard to recognize ME unless we take a full video of some situation. It is amazing how life’s happenings color our world and our perception of self. Ask “Do others see me in the same way that I see me?” Probably not. Introspection is not the same as analytical evaluation is it?

I John 1:5 “This is the message we have heard from Him and proclaim to you, that God is light, and in Him there is no darkness at all.”

Excuse Me, You’re In My Blindspot: Kona’s Journal

“Yet it was kind of you to share my troubles.” —Phil. 4:14 ESV

T shirts with attitude sayings are not particularly my thing. But this one should be part of my wardrobe as there are so many times that I run into people without meaning to. Even today I used a more polite “excuse me” as we were out and about shopping. But the biggest issue today was my poor little doggy.

I know that I have anxiety, but today it was challenged to the point of panic driven behavior. Just afternoon about one o’clock I took the dogs out for a stroll outside to find a couple items. We walked quite a bit from building and finally after the mail. On the way back from the mailbox, Charlie put Zucchi, the cat, up the ash tree. It was sort of funny. Then we came back into the house.

I was eating my snack and drink and not paying attention to the puppy when suddenly it dawned on me that he was not nearby. Immediately I began calling his name and got no response. “Kona Come!” So anxiety kicked in and I began looking everywhere in the house for him. (So I thought.). The behind the doors, under the beds, behind the sofa and in my search I noticed the front screen door was slightly ajar. The warm-ish weather always makes the frame swell and it has to be pulled shut to latch.

My brain said, he’s not in the house, he must have slipped outside. The first few minutes outside started the “baffled” feeling. Where was Kona? To me he was lost, hung up on the short leash that I had left on him. After fifteen minutes outside, I panicked. Literally. I was a hot mess.

Lost puppy is not how I expected the day to happen. And valentine’s day at that. A few phones calls, constant searching, lots of walking. I was trying not to trip in my tear induced state. Where was my puppy? To me, he was lost.

Blind Lady Trial number 3, 429 was in full scale. How in the world could I be trusted with the care of anything? Apparently a little black puppy had done me in. I was now a complete wreck. Gavin came home with the truck and the dog in the house barked. Honey had been in the house because I had a neighbor helping me look outside and she was just in the way. Then he heard another tell tale bark.

Searching through the house, he found the little black Shih Tzu wrapped up around the chair and the piano bench legs. The leash that I had left on the collar did get stuck on something. And yes, he was wrapped up around some major sticks (of furniture). He was stuck enough not to respond to my calls.

Why had he not barked ever for me? Why had he not answered me with a bark or whine? I know he’s a quiet little puppy most of the time but this was a bit much. Perhaps he had tried to get unstuck and only made the collar tighter so that he could not bark. Obviously he had hidden there to chew on a little twig or something. But really? Excuse me puppy, but you were in my blind spot. I had even looked under the piano bench. But not under that chair as he had never gone under the chair before.

“I’m sorry you lost your puppy.” This was little Melody a few hours later when we dropped off an item or two at her house. Who had told her, we don’t know. But the tears in her eyes were as real as the tears that I had shed earlier. She wanted assurance that all of the puppies and kitties that we had were okay. Honey? She’s in the pickup with Kona. Charlie? He’s home in his hut. The kittens? They are all in their little houses. Okay. Okay!

This past evening we put an Air Tag on the dog’s collar. Yes we did the research, and decided the benefits outweigh any risk. The Air tag is in a silicone case on his collar. And it is the cheapeast piece that we could do for peace of mind. Philipians 4 has much advice for us who suffer anxiety. Verse six and verse 13 tell us to put anxious thoughts in their corret place and do things in the strength of our Lord. But I am loving verse 14 right now. “Yet it was kind of you to share our troubles.”

Well, I boiled that cup of tea a bit strong. And I did not do so well on hunting for a new harness for him either. I neglected the fact that we have to pick him up to get in and out of the truck. The harness was an H style without a chest to girth support. He has to have the X style, even if it is not the step in. Though I think he likes the step in, he’s pretty quick at “Buckle Up!” So I am back to the drawing board on a new harness. Bugger. The Step in X is the best style for smaller dogs so that they cannot excape. The one I ordered had the x over the top not under the girth. Bother.

Blind lady issues will be part of my life going forward. I have RP or retinitis pigmentosia. Loosing things is part of my life. Like the other day when I spent all day looking for my woolen homespun crocheted hat. It was on the table full of what nots! We just have to find the right tools to help me in my “trade.” One of our recent purchases was a talking thermometer. That was very helpful when I had my ear infection. Another recent purchase was the cup full meter. It beeps much like the back-up alarm on the truck. Closer. Closer okay over filled! I use it daily multiple times. And I don’t even poor my dark drink into a dark cup!

Unfortunately I can’t wear an Air Tag or a too close meter for people when I am out and about. Can you imagine the alarm going off constantly because someone is in my blind spot? The nerve of people to get close enough that my alarm might go off. Spacial awareness is not the God given gift of everyone in the world. Some of us are visually challenged. The other day while picking up the puppy and “bed” at my daughter’s house I knocked over the oldest grand child because I did not know that she was in RANGE. Oops. Much apologies later, I was back in route to my destination. Yep, I’m blind. Sorry little girly! Too close meter might not have even worked in that situation.

Oma-BOO!

In the mind’s eye, a memoir on the road to blind spots. This is an entry in the going blind journal. If hopelessness ails you, join me in learning to laugh at yourself. “Looking in the mirror never had such a good view until I was blind.” —quote from my father after RP took his eyesight. Sometimes the mind’s eye gives a better vision.

Eyesight loss brings with it a new sort of anxiety. Fears of poking the baby in the eye, accidentally hitting a moving toddler, stepping on the preschoolers toes, colliding on the stairwell with a toddler, running into a half open door…. All these things have a sense of the “boogie” man in them. And a week or two ago it seemed every thing should happen all in the same week. Thank goodness everything passed with apologies and not much damage was done to any one person or any one thing. But surprises have never been a favorite thing in my life. It seems around every corner is a little tiny fairy-demon ready to shout “Oma-BOO!”

Electrical fence sensation syndrome is something that I never thought I would be experiencing. Some people with PTSD experience this quite frequently. A couple of years ago, my daughter and I both had to get through the unexpected shocks after our car accident. She and I both had the unexpected tremors for nearly six months. I had it more so than she, simply because my eyesight did not let me see all the upcoming traffic possibilities. But eventually, riding in the car did not produce such anxiety.

Then one day when my husband was home for the weekend, it happened again. I came around hte corner in the kitchen and his sudden presence sent the shock wave through my body. I became aware that my body was playing tricks on me. The ability to move freely about the house in the presence of another person was changing. And one day while at my daughter’s house my anxiety reached a peak that while putting my coffee cup under the Keurig spout, the sudden presence of her hand prepping the coffee receptacle made me jump. And the accompanying electrical shock that ran through my nervous system told me it was just time to sit down for a spell.

Things that go boo in the dark use to be a fun game that children played. Now, not so much. However, it’s the middle of the day half open doorway that provides the most excitement. Thank goodness the closet pantry door at my daughter’s house found my left wrist instead of my face!

The coral Kalanchoe in the library has surprised me with a hefty dose of blooms this winter. I was happy to see the flowers agains the snow outside. Though the snow is melting a little bit each day, the winter is still hanging on to the cold. I am thankful that I live where we are supposed to have winter weather. Those poor people in California with foot upon foot of snow do not know what to do with it all.

When the darkness closes in on me, still I will say “Blessed Be the Name of My Lord.” And it’s odd how the darkness is more of a foggy visual that should have more it the view finder that what I can actually see. The mind wants to fill in the blank places, but after awhile I realize the blanks are simply empty. Though I know there are people off to the right or the left, the void is still there. It makes one feel very ALONE in the crowd. Greeting time at church is one of those moments that makes me feel like a really old birch tree with sagging bark. I feel so rooted and decadent. While everyone else seems to move freely about laughing and sharing morning greetings, I am firmly planted. Another verse phrase that goes through my head is “I shall not be moved… though my eyesight fails me and the visions around me fade away… I shall not be moved.”

I finished my hat and mitten set from the lumpy homespun wool that I have had around for a few years. I kept trying different projects with it and finally decided to do a mosaic set. I am quite happy with the paring of acrylic yarn and wool also with the color pair. And it does fit and feel ever so warm. I really ought to stick to this idea.

Welders burn is not something I have ever had. And though I know nothing about welded the description of it’s effect suits me perfectly. Light sensitivity on some days requires me to wear sunglasses. The blurry vision hampers my hopes for a good day. The feeling that my eyes are dry or there is something in there making them itchy is both annoying and distracting.

I have been trying to make my good girl do more for me. But getting her to sit with me when I am cold is not one of her “loves.” Honey is much of what I wanted in a dog. She does well on the guide harness and will lead me in the dark even with just a collar grab. Honey also knows my asthma cues and will nudge me to the inhaler or rouse me when sleeping to get the oxygen flow back to normal with a puff on the rescue tube. Honey also is easily exercised with frisbee or a good game of “hide and seek.” She is content to eat in her own space and sleep on her own bed. The one thing she will not do is CUDDLE.

Day after day we head to the sofa for my morning coffee and devotional time. She almost always puts her back to me. Rarely she will put her head im my lap. And even the day care says that Honey will not take a good picture so she has never been the day care star!. We say that the phone, or the box is something she thinks that will “steal her soul>”. Now yes, I know an animal does not have a soul. But her spirit, maybe? Even when we go outside, she does not go out to be WITH us. Her first pick up is the frisbee. Out side to her means frisbee. Any thing else is just a disappointment.

In conclusion, I am not changing my call sign. the little three letter word is simply to easy to say for the grandees. I”ll try to keep a more steady actitvity rate and not run into things this week. And I also decided to switch up the shoes and get back to the healthier cross walk. I am simpy tired of winter, tired of snow, tired of cold, and am going to push the spring along a little bit by changing up the shoe choice. I’ll probably get cold. Oh, well.

Out of sight, out of … hands

Version 2.0 on the “out of sight” installments. Last one was just onee year ago on January of 2021. Perhaps I am getting closer to a title for my book. Haha

Out of min…

Some people think that loosing one’s mind involves not being able to find the car keys. For me it was the carrot smoothie in the fridge…. I spent nearly 10 minutes trying to locate the drink. I had taken it to the library, right? No, then I went to the living room. Oh, yeah in between all that i had used the restroom. Okay, where are you little carrot smoothie? I found it in the fridge.

Or maybe I had not lost my mind altogether. I was simply distracted. Until the book I was listening to brought up another entire area of loss that most people never think of. Gestures and facial expressions. Here’s my story and I am sticking to this one.

Out of memory…

A long time ago when I was just a teenager, I remember an incident that shook me up quite a bit. We were at one of those famouse birthday luncheons at the church where I grew up. This particualr evening, my dad was into his famous story telling moods. And whenver there was an audience to be had, he seemed to think that he was the center of everyone’s attention. So, when I ran about to fill up the coffee cups as my waitress heart deemed necessary, the next few moments were very much a tell tale of the RP digression of his eyesight.

The coffee was delivered, and the speaker was not attentive the the surroundings. I waited, and waited and waited to get his attention and let him know that the drink had been refilled. Suddenly, the story teller gave an unexpected hand gesture that upset the apple cart. But that was not even the pretty part. The surprise of the spilled beverage, the demeaning words and the angry expressions by my father in that particular setting (church) made for a memory tattooed on my hearts emotional being. Yes, the negative response is a memory somewhat repressed, but nevertheless not forgotten.

Out of words…

Years later, a friend of ours said that one’s emotional explosions and expressed words after an upset hot beverage are really what the person is really truly made of. When the coffee spills, how do we respond? Surprise and shock do not necessarily mean bad words. Sometimes, choosing words of blessing and apologetic behavior matter much. I always felt that my spilled milk was always followed by yelling and angry words. No reason to cry over spilt milk? Well, being blind and having the spills happen so frequently either makes one wise up and sue sippy cups, or find some other solution to the frequent spillages.

Out of mouths…

Dealing with an eyesight loss can mean a whole new change of character. My uncle lost an eye as a result of an unfortunate farming accident. I remember visiting with him about the changes in his life. One particular change was finding moved objects in his path with toes and shin bones rather than his eyes. Now he found himself frequently cussing and fuming. It was both exasperating to himself and to those around him. Apologizing for his surpised outbursts was becoming far to regular. Ahh, how eyesight loss changes the way we must move and the way we react to surpises. There is no more laughter at the jack-in-the-box events that happen. One soon learns to live in a constant state of tension while moving for the possibility of those awful little “weasels!”

Out of hands…

My gesture loss happened during my children’s high school years. I was done teaching club at church due to my hands constantly hitting an unsuspecting child. Pointing across the room only to poke a child in the eye was so distressing. The gesture loss was hard for me. I use to talk with my hands all the time. Who does not want to point a certain thing out while talking? This abilbity to throw my arms about during speech actually began to decrease the amount of speaking that I would do. It is really hard to stop acting out like a stage professional during a good story. But waving my hands about was not an option with the peripheral vision loss. How do I visit with others in group settings without being able to point or gesture in some common way?

The next obvious loss for me was the facial expressions and hand gestures of others in group settings. It is also hard to tell, who might want to jump into the topic next with a speech that they deem very important to give. While I may be able to view the person across the way, the others around the table disappear from my view. This might allow for greater focus, but moving my eyes around to catch the others reactions to a speaker is exhausting. This large group silence at times is really unbearable for me. Expecially when I still remember so much.

Except where my smoothie is…

It was during this loss of “circle movement” by the others in a group setting that I noticed some other things happening. More often then not, I was getting “shushed” by those around me. I had missed some conversation cue of eye, or gesture that indicated who was next in speaking. My thoughts that were so ready to blurt were getting stoppped up by those around me. This too was hard. I began to feel like certain people were treating me as if I were a misbehaving child. Becoming blind day by day, year by year does not mean that I am reverting in my behavior. Simply put, I was now out of the circle…

So now, I find myself listening more and more during group settings. When I am so desperate for interaction with people, I find that interaction being stolen by my loss of vision. The surpise of a cake plate upset on my lap or on the floor feels like a common occurrence while at family gatherings. Coupled by the deafness in my left ear, the abiltiy to even hear the oncoming delicasy, is hampered by the lack of sight. Plate on the floor. “Oh, no!” Learning to live life in a perpetual motion of “i’m sorry!” Is not very fun. Embarrassment and humility do not always gather closely. Sometimes the embarrassment is overwhelmingly sad. The feelings of loss and the inability to even help with the cleanup are so frustrating. Playing statue is not that easy!

I really don’t like surpises any more. Boo! Is not fun like the peekaboo of babies and little children. The last few times that we had Christmas present openings, I lived in a state of perpetual “what if the coffee spills?” And not knowing what was in the presents or trying to figure the item out in the semi-dark was exasperating. Having the person next to me tell me what each item was supposed to be and trying to find the right facial expression after my completely confused confoundedness was not enjoyable. I began to really dislike opening my gifts. Watching the others was somewhat more enjoyable. But oh, how I needed a little parrot on my shoulder telling me all the happenings about me. It makes one feel very alone in a crowd.

And that’s the last experience that I want to share on my way towards becoming invisible me. The last time that I went to a church event without a close family member was very painful for me. Extended family that has not grown up with a “blind father” does not really understand the needs that arise as the Retinitis Pigmentosa progresses. While I could walk a straight line down the sidewalk, I could no longer navigate a crowd of people carrying plates at a potluck. Attending the church without my husband had turned out to be a “fatal” choice for me and I had become invisible. No one in my current church was familiar with the challenges of RP and I was left sitting in a corner throughout much of the meal event. I finally left the crowd and sat in the sanctuary alone. Truly alone. My ability to “flow” through the plate bearers left me feeling very disabled. I cried without end over the potential of “spilled milk.” I called my husband, and he was able to come and pick me up. The rest of the day was spent in tears. The people that I had gone with did not understand my needs, were busy and had not ever checked on me. I felt unable to express myself and ask for help in a situation that left me feeling so invisible.

Recently I read “The Hobbit” by J.R.R. Tolkien and found it very full of forward motion. The adventures of the hobbit keep one listening just to see what happens next. In the book the discovery of a magic ring gives the little fellow the ability to become invisible and disappear from danger and tribulations. Honestly, being invisible and feeling invisble are two totally different phenomenon. Choosing to shrink from view within a public event and loosing the ability to see who all is there in the public setting are two opposing feelings. Being blind in a community setting makes everyone present invisible to the blind person. Not a very fun feeling when you walk into a group of people and all of the talking stops. This has happened to me so many times that I cannot count. I can begin to imagine however what it is like to walk into a room that feels full of people but seems empty until someone addresses my presence. My father’s ability to get the group to burst out in laughter helps to break the ice about his blindness and lets him know just how many people are really in the room. I don’t see myself ever being “on display” as that-blind-lady. I don’t see myself breading the ice with bad jokes just to count the voices of laughter within the space. i don’t see myself as others see me. I cannot.

My position in a group setting is usually at the piano with the whole commune behind me. Sometimes I wish I could turn the piano around so that the people were in front of me instead of behind me. Maybe that’s the next change in my life. For now I’ll let them see my hands while I play piano since I cannot. (P.S. My therapist said that I am not supposed to use “can’t” in my speaking or writing anymore. I asked her if she still could drive a car… I said, “I cannot.”)

Still trying to find myself

This is an RP update. I did not know that when I first started writing this one. Sometimes the journal of going blind one day at a time gets an entry. I could call it the Chronicles of Yvonne Annette. Not sure anyone would even read such a book.

Seven years into blogging and I am still trying to find myself. Just the other day I decided to look up some of the history. It is really pretty embarrassing to discover that my writing has taken so many twist and turns. Perhaps that is normal.

For one thing, I find it hard to be completely frank and honest. Someone might actually read my blog that knows me and ask me a question that I do not want to answer. Here are a few potential nightmare questions… “How can you say that you are blind and still crochet?” “Why don’t you just get a job and have something to do that way?” “Where is your focus and purpose for this blog?” “When are you ever going to write something that earns money?” “What do you really want to do with your life?” “Who reads this stuff anyways?”

Here’s the thing, for the most part of my fifty years I did not know those answers and I am not even going to attempt to try! Writing for me is a release. Just an exercise, kind of like taking a walk that has no purpose. Every once in a while we take a walk that actually leaves us filling fulfilled and happy. Every day I send my dog out to do her business or on the days I actually go with, there seems no other purpose than just doing the routine.

Routinely writing for me is relaxing and a way to release often unintelligible thoughts. Once in a great while, the thoughts find a path and I find a gorgeous waterfall. Other times all I notice is the barren ground and large cracks in the winter earth that are screaming out for some snowfall moisture.

Today is one of those awful after-insomnia days. The ruminating thoughts that keep me awake at night are nothing worth repeating. Yet on they go. Sometimes, my mind is so hyper-alert it feels as though I did not get a wink of sleep. The sheep counting “God Bless You”-s did not work. The Bible mindful listening did not work. The warm milk and hot tea did not work. The pre-slumber routines did nothing to aid in the sleep process.

Last evening I went to church to do a recording with a friend. The song was quite repetitive and the count patterns got stuck on repeat for my mind. Also, when I used the facilities to release my full bladder, I walked right into the wall afterwards. How could my tunnel vision keep pulling so many tricks on me? I am constantly finding myself “lost” these days. Often right in the bedroom while turning in circles to put away my clothing. I ran right into the table the other day in the kitchen while doing the dishes. Had I forgotten the table was there? I was not paying attention to my other senses and did not even realize that the rug under my feet was actually NOT there. Ugh. This blind think sometimes catches me by surprise.

In just one half hour the brand new song was embedded in my memory and I had to play it by little signs like # * > 1 2 X and letters for chord names. My focus on how many times of certain chord patterns kept me from reading the words all together. Besides, unless they are size 50 type, I would not be able to read them anyway. Same girl?

On another note…. The ability to learn a new piece of music is getting to be shorter and shorter time expense. The song was mentioned to me one day. I listened to it a few times the next day. We ran through the piece with some “guitar chord lead” sheets that same evening. And by the third go round I actually did not loose my place in the sheets and words. This is the same girl that failed her first few recitals in early years of piano lessons. This is the same girl that could not memorize pages of classical piano for the jury sessions in college. This is the same girl that could not play a single note by ear training in the early years as church pianist. This is the same mother that made her little string playing children switch positions to play a song in the key that it was written so that mommy could accompany them at the nursing home church services. This is the same woman that bombed reading the music for her daughter’s senior recital and ruined the whole event (in my mind.). This is the same woman that one church rejected as pianist because she could not play the praise and worship “style” that they wanted. (Which by the way is the same “style” that she now plays completely by ear with just a guitar chord lead sheet!)

Not hardly. I feel like a completely different person than I was at twelve years old. I feel like a different person than I was even at 40! How do I make peace with this new me?

Without

That would be “as opposed to with or not having”

The definition of without can be defined as a preposition, an adverb, or a conjunction. In this situation it is a preposition and used as “not having the benefit of…”. In my life today on my walk through the neighborhood near my daughter’s home, it was walking without the benefit of a real true helping canine. Ahhh, but the tears flow fast.

There are many different types of grief, many different kinds of losses. Mourning takes all kinds of shapes, sizes, and emotions. But this is not going to be one of those “this is what happened and now I’m going to shave my head” type of writings. Nor is it the “I will just go eat worms” of the century story.

Today at church our pastor shared the second sermon in his series on the life of Job. He also gave an excellent children’s message on bad-awful-terrible-days. I go to church mostly for the children’s sermon. It’s the most relatable. Sorry, pastor. We did not leave town immediately, as my husband’s folks needed a few little errands done. They experienced one of those everything-went-wrong-mornings that pastor talked about in the children’s sermon. After figuring out the keyless entry to a vehicle and completing those little “save the day” items, we headed home to pick up the dog and go for lunch with our daughter number two and her hubby, our son-in-law number two. That is no indication of our feelings for them. We love them both the same!

After our lunch together the father daughter duo went to work on their plumbing project and I made the awful decision to go for a walk with the ditzy doodle Honey. It might have been a good decision if there were not so many factors that play into our unhealthy relationship.

We made it back to the house in one piece. And my anxiety attack did not land me any worse off than previous panic experiences. But here is the gist of it all.

A few years ago, I had a rescue dog I named Seymour. For some reason, when I put the harness on him to do the guide dog work, He just GOT IT. As a person going blind, there were moments that we did a few minutes of training and Seymour amazed me. His ability to grasp what I needed was just there. Then gradually, he got lazy in the house and because of his 95 pound stature , he would take up half the floor space. I began tripping over him in the house. He worked for me outside the front door, but slept like a baby inside the house.

And rather than making the changes to accommodate him and his “allergy” inducing episodes with family or friends, we decided to re-home him. He is happy in his new family.

But today on my walk with Honey, I realized once again exactly how gifted Seymour was in guiding me. Recently, my husband saw some statistics that stated even if the bloodline of the dog has a propensity for guide dog characteristics only about a quarter to a third of the dogs actually turn out to possess the qualities of an excellent guide dog. I did not know these statistics when I decided to trade in one dog and get another.

Seymour was trained as hunting dog, and probably failed the test. He was either abandoned or a run away. In his rescue days, he spent time healing from a trap wound on his foreleg. When he entered our family, we enjoyed the fact that the puppy was all out of him. Then, the days came for him to “guide” me.

His knack for learning about trees, hitches, the names of places, people, objects and such was uncanny. But more than his ability, there was the feeling of security that he gave me. Now that I have Honey, I can really grasp what I lost by giving him away.

Going blind, and being blind are two totally different things. But going blind is being blind in a new way all along the road. Some days I am more aware of my losses than other days. Some times it hits me literally (like when I run into the doorframe or something). And some days, like today it hits me in the gut. Hard.

Honey just does not have it in her to serve my need for security or stability. When she sees things or observes changes, her first reaction is “there is someone that I want to go jump on and that should love me because I love them!” Seymour gave me signals that were completely different. Honey gives me anxiety with changes. I never know if she is going to jump, bolt, or love with doggy exuberance. Seymour would have pushed me towards the person rather than drag me. This relationship is so different. And so hard to explain.

There are things about having a “helping” canine that you can never really explain to other people. These feelings of security and anxiety reduction cannot be fully expressed in one writing. If you have ever had a relationship with a dog like this, once it is gone, feelings of grief and loss arrive at moments least expected.

Today, was one of those days.

Honey might be sweet. But she’s a little sticky once she gets all over your fingers. After awhile, I just want to wash my hands of the whole affair. I want to trade her back for Seymour. But that’s not an option.

Just like it seems our family could only have one really good family dog, and his name was Furbie. Well, that’s a whole different story of a little Shih Tzu crossed Border Terrier that even had a toy he named “the worst Christmas ever.” That dog was one of a kind. Seymour was one of a kind, too. And Honey is absolutely not any thing like Seymour.

The anxiety over my eyesight was not given any relief by having anxiety over my hyper doodle. If anyone wants a dog that loves frisbee and flying fast on all four paws, you can have her. While she has all the best qualities of a really good dog, she just has not picked up on the “service” thing yet. And if she does not “GET IT” soon, she might just get replaced.

(Here’s the deal: I can only afford to go through so many sets of underwear, before I’ll have to get some fancy ones to catch the results of all this adrenalin dump that she is creating in my life. And, I really do not want to just sit around all the time, when I once knew what it meant to have a dog named Seymour that could help me for REAL!)

So there.

I said it.

I’ll try not to cry myself to sleep tonight because I miss my dog.

Or maybe, I will anyway.

Get out the new tissue box. I might be using the whole stack up tonight.